Today we had a bike ride planned. Waking up to not so good weather for that, I looked at Derik and said, "Hey. Lets be spontaneous and go to Ikea!!" If anyone knows me I am not spontaneous...I like plans :-) At 11 and with no money to spend we hopped in the back of the huge pickup truck Derik brought home from work and headed WAY South. It only took an hour to get there and Zoie always does so well in back if im able to sit there and play with her. If you have been to the Centennial Ikea, you park in a parking garage then take stairs or elevators up to the showroom. This was our first go around too :-) We parker, I loaded Zoie in our Boba carrier and headed to the elevators. These next events are key so read closely :-)
As we waited for the elevator a mom walked up with three daughters; two were walking, one, the littlest one was in a stroller/wheel chair. We all hopped on the ele vator and unlike me at all I butted intotheir business and told her that I noticed her daughters feeding tube, which you would only notice if your kiddo has one. I went on to tell her Zoie has one that she is on at bnight. Something told me to talk to her......
She went on to say she noticed Zoie had microcephaly right away (small head) and that her little girl sitting right there named Samantha did too.
As we stepped off the elevator we got to talking with them more, and they were meeting another lady there who has a 12 year old with it as well. She asked how Zoie got it as(genetic) and told us that Sam is three and has it because cells didn't form correctly in utero . Sam is in a wheel chair, has seizures, is deaf, but signs, and has an incredible mom who is a huge advocate for her. At this point I started crying. Not just a little, nope, I am embarrassed to say I was pretty much weeping. I had happy tears. I have been wantinguyen so much to meet other families who have kids like Zoie. Why? because they are the only ones who get it.
As I cried in front of an audience at Ikea ... this sweet mom gave me a hug a.d said its okay. Now you know someone who gets it.
I cannot describe this situation so well as, God put us at Ikea, in that elevator , with that family, for a reason. I have never felt God more than I did today.
We learned about something called Colorado Angels Pagient, this lady Rachel is in charge and she invited us to go in August.
I feel this is our chance to get involved with Microcephaly and be even bigger advocates for Zoie.
I hope you all enjoy this Is"God moment" as much as we did.... I HAD to share because I have never experienced anything like this. <3
By the way, if my spelling is horrible, its because we are in the car on our way home :-)
I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear
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