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Showing posts from May, 2015

Tid bits

I feel like I have so much to catch up on! Birthdays, running, doctors appts, and the girls have kept me so busy. Spring time is always the busiest time for us, even more so than summer! Okay, to get one thing out of the way, Zoie had a hard, or I should say, we had a hard appointment at Childrens two weeks ago. her checkups with CF and Neuro were perfect! She is in the 14th, yes 14th percentile for weight! This is huge for us! Her lungs were clear, her meds and CBD oil are "working" as good as expected for now, and her GJ tube swap was easy breezy. All of this was kinda overshadowed at the end of our neuro appt when our awesome, yes an awesome doctor asked us if we had done anything to prepare for the future. I have a weird relationship with our neuro doc. I love her because she is amazing at helping us manage seizures, and she's on board with CBD. I hate her because it's so easy for her to say to us "how Zoie will probably pass" or "have we thought a