Life as we know it

Halloween is a few days away and it's one of our favorite days of the year at our house! We love being in a friendly neighborhood with lots of fun houses and kiddos to go visit. We have run into a problem the last two years with Zoie though and her basket full of candy; she can't eat it. Not because she is allergic of has allergies, but because she has scensory issues with chewing foods and is also what we call a tubie :) Zoie eats puréed foods only during the day, and gets tube fed at night. When Zoie was 9 months old and so tiny, we along with her CF team make the decision that literally saved her life. We would have doctors place a GJ tube to the left of her belly Button that we could use to pump extra calories in her, rehydrate her when she is sick with water, and put her meds in her morning and night. She wouldnt be alive without it. When we heard through a friend that people were participating in the Teal Pumpkin Project for kiddos with food allergies, it only made sens

I don't do this often. But sometimes if I write, it's my release and then I can move forward. If I don't write, I get a type of writers block where it sticks with me and I can't move forward. So I'm going to be real for a bit. I'm going to write down my feelings and be vulnerable and trust for no one to judge, or feel sorry for me. I can't promise you won't cry, but I can promise this is me being honest and real. If you know me, you know I'm a very positive person. But if you know me really well, you have seen me break. You have seen me cry, say that I'm not strong all the time, and say I need a hug. I'm actually really thankful I do these things. If I didn't, I wouldn't be human. I'll start by saying this. And excuse my language. Seizures fucking suck. I have wanted to say that for a long time. It doesn't mean I'm not Christian, it's the truth. They will suck the life out of you. They are unpredictable. They are sca