Skip to main content

Just a norrmal day :)

This is Zoie helping mommy blog :0  She loves technology!
 
We have had such a wonderful and blessed week in our house.  With Zoie feeling better, we have actually made plans and got to get out of the house.  We enjoyed a fun coffee date with grandma followed by some Easter shopping at Target.  If any of you moms are like me, I could go to Target everyday.  It's the one store I don't get sick of.  I always find a cute shirt, dress, or leggings for Zoie, I love the smell of their Up and Up brand baby cleansing wipes, and probably use them too often, so we always need those, and I feel like I'm always browsing their book section for a new good read. 
Zoie rocked it in speech this week and we were told her vowel sounds are coming out more.  We are working hard on the "P" sound by "popping" tissues in the air.  A little like blowing them outward, just with the "P" sound.  Derik got to come home early Wed and enjoy doing Zoie's OT with her!  I love it when he can do that and see how well she is doing.  I took advantage of the time and cleaned :)  You would think I would use the time to read or relax....nope, I cleaned for an hour.
 
I had a first this week too, after almost two years of making trips to Children's for checkup appointments, Zoie and I road tripped it down there all on our own, with coffee in hand, and KLove on the radio.  I have always taken someone with me, it's a little bit of a drive, sometimes Zoie enjoys company in the backseat, and there is a chance she may have a seizure.  Did I mention I hate driving in Denver?  ;)
Anyways, I was so proud because I stepped out of my comfort zone and did it all on my own.  I am sorta prepping myself for when we have another kiddo and I may have to leave one and do it, or sometimes take two. 
Zoie had a post-surgery follow up with the GI clinic.  It went very well!  In the last two weeks her lipase levels have went from 6,000 to 1,600, and her Analays levels went from 1,200 to 200.  Thank you GOD!  She is starting to gain weight back.  When we left the hospital she was 15.8 lbs, and yesterday, two weeks later was 16.4 lbs.  We really need to fatten her up especially because she is now 30 inches long!  Our long and lean girl.
As we were in the waiting room, I read this quote on the wall and wanted to leave you all with it.
 
"The marvelous richness of human experience would loose something of rewarding joy if there were no limitations to overcome.  The hilltop hour would not be half so wonderful if there were no dark valleys to traverse."-Helen Keller
 

 

Comments

Post a Comment

Popular posts from this blog

A letter to my daughter on your first day, of your first year of school.

I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear...
23 comments
Read more

That extra Chromosome 21

My original OB doc sat me down 8 weeks ago and told me she wanted me to see a specialist for our 20 weeks ultrasound. Not because there were any factors pointing to abnormalities, but because I'm one of those weird people, who no matter what we do, we get thrown curve balls when it comes to pregnancies and births. Walking into that appointment today, Derik and I had zero fears, and zero doubts that everything was going to be perfect. And perfect she was! 10 little fingers, 10 little toes, a big ol' noggin, 4 chambers on her heart, and she was moving like crazy. Let me back up and say that Derik and I took the necessary steps we felt we needed to to ensure that we have a healthy baby. But, we also know, that in the end, God is in full control and it's His plan. Always! So, after looking Charlie Fae over, our doctor proceeded to tell us that she has a white spot on her heart. It's not small, but it's also not large. This white spot is a sign of Downs Syndrome. I can...
8 comments
Read more

Someday I'll wish upon a star....

Okay, so, since we have never went on a family vacation, im not experienced on blogging them obviously. Bare with me, as I do my best to share in words with all of you,Zoie's Make-A-Wish beach vacation to Newport Beach, CA. Zoie's wish got accepted about 2 months prior to our vacation after going through several steps and an interview process with Make-A-Wish Colorado. Obviously Zoie couldn't tell us in words what her wish would be, but we know she loves the water, she loves textures, being outside, on walks, on runs, and music, so what better place to experience this all than at the beach! We choose Calofornia because it was fairly close, had Disneyland, we knew the temp would be tolerable, and Newport had the Boardwalk. Make-A-Wish was SO accommodating in every way, in helping to make sure first and foremost that Zoie's needs were met! Our family friend, Erin Hoffner threw us a wonderful, beach themed, send off party two weeks prior to our departure. Here, we got to ...
4 comments
Read more