Skip to main content

Proving Doctors wrong

We are headed home after lots of driving to and from Denver and seing lots of the best doctors for Zoie . This was a very long awaited appt with the feeding clinic at Children's A, that included a speech therapist, dentist, GIVE doctor, regular doctor, OT therapist, .... and probably some more that I am forgetting. What a fantastic team though! Yesterday we went down all afternoon for a conference and swallow study. I am so proud at how well Zoie did eating in front of four doctors, a huge machine, while watching daddy, perched up on a very high carpet all while mommy fed her. She chewed, swallowed, and drank lots of fluid. Praising God a million times right now because the doctors saw no form of aspiration, saw no choking, and internally, Zoie was perfect! No need for surgery, and absolutely for now, no reason to not keep feeding her. This morning we sat down and went over all these results and what we can now move forward with. As we sat down, the first thing out of the doctors mouth was that without us as Zoies parents, they would have said it was just easier to do G tube feeds . Easy isn't the answer in my book. I will push and advocate for that girl forever. We got exactly what we wanted Nd needed these last two days. To know that it's physically safe to keep feeding Zoie her purees, and that we can start feeding therapy once a week and see if we see progress in 6-8 months. I know we will. Im no specialist, and just with my patience, persistence, and belief, Zoie is eating so much better than she was 6 months ago. A huge weight is lifted, I was scared, but prayed a lot, and thanks to the Man upstairs, Zoie once again proved the doctors wrong with the swallow study! I am super excited to see what the help of a feeding therapist can do for our family, and to see where Zoie is with her oral motor skills in 6 months! Derik and I love this little peanut SO much and are thanking God!!! Time to stop at American Furniture for some shopping after a stressful two days :-) Thanks everyone for the prayers!

Comments

  1. TonyaAugust 13, 2013 at 10:54 AM

    Awesome news guys! You're all 3 so amazing! And yes, always always give thanks to God. He loves you!

    ReplyDelete

Post a Comment

Popular posts from this blog

A letter to my daughter on your first day, of your first year of school.

I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear
23 comments
Read more

That extra Chromosome 21

My original OB doc sat me down 8 weeks ago and told me she wanted me to see a specialist for our 20 weeks ultrasound. Not because there were any factors pointing to abnormalities, but because I'm one of those weird people, who no matter what we do, we get thrown curve balls when it comes to pregnancies and births. Walking into that appointment today, Derik and I had zero fears, and zero doubts that everything was going to be perfect. And perfect she was! 10 little fingers, 10 little toes, a big ol' noggin, 4 chambers on her heart, and she was moving like crazy. Let me back up and say that Derik and I took the necessary steps we felt we needed to to ensure that we have a healthy baby. But, we also know, that in the end, God is in full control and it's His plan. Always! So, after looking Charlie Fae over, our doctor proceeded to tell us that she has a white spot on her heart. It's not small, but it's also not large. This white spot is a sign of Downs Syndrome. I can&#
8 comments
Read more

Real and raw emotions

My name is Lindsey. I'm a wife. I'm a special needs mom. I'm a regular mom. I'm a friend, a daughter, a sister, and a believer in God and miracles. Bedore you question why I'm writing this, let's just say that writing helps me, it's like a form of counseling, plus, both my girls are tucked into their beds sound asleep and I felt the need to share what happened today. Going back to being a believer, I used to be SO good at closing my eyes every night and thanking God for giving me another day with both of my daughters and my husband. I started this prayer (it's a simple one) when Zoie went a few nights a year or so ago, with seizures that lasted all night long, and I had to sit up and watch her, just to make sure she was still breathing. It made me thankful, for the simplest things in life. As time went on, and "bad" stuff doesn't happen, you forget to be thankful for the simple in life, the things that truly matter. Today was a normal day.
4 comments
Read more