Being a parent of a kiddo with CF, means being an advocate; an advocate for Zoie, and for everyone else who has this disease. This means sharing with people, teaching people, helping raise money for research and a cure, and being a part of anything that comes in our path that has to do with Cystic Fibrosis. Sometimes we all get so caught up in "life" we really forget what's important. Im guilty of it, and so is Derik. We get caught up in finances, and what to wear, or what we should do on a Sunday. Life goes so quick, I sometimes am even guilty of forgetting for a few seconds that my daughter has daily struggles because of her Cystic Fibrosis, and right now it's my job to do anything in my power to help her.
Last night Derik and I got to be a part of a glamourous, heart warming, and humbling evening surrounded by Cystic Fibrosis families. Derik had an employee (high up) who works in the insurance department for Enterprise come to him about a year ago and start talking about CF. Kim has a niece with CF, and little did she know we had a daughter with it as well. They have shared stories and courage, and she told us and invited us to this amazing event last night for Cystic Fibrosis.
With Enterprise being a huge sponsor for the event, we went as one family to represent CF and Enterprise along with some other employees. We got to get dressed up, I even wore heels, which I don't do, and really have a life changing evening.
We heard several stories, some videos, some live, of kids, parents, and adults who live with this disease. This is where you take a step back and remember that Zoie, even though she is healthy right now, fights the same fight that these people do on a daily basis.
We heard the story of a mom who has a 7 and 10 year old boy and girl both with Cystic Fibrosis. It showed them doing their breathing treatments, taking their enzymes, doing vest treatments, and exercising. The 10 year old boy did a lot of talking, and the one thing that stuck with me, was this, " I pray that one day there will be a cure for this, so maybe ill know what it feels like to breath without wheezing and live without this disease." He had tears in his eyes when he said this, and he was 10. No 10 year old should be having to say something like that with tears. It reminded me how very important getting Zoie's two vest treatments in everyday is, and maybe why when she sleeps she snores and always has her mouth open.
The event raised over 85,000 dollars, and CF research is so close to getting a drug that will help 60% of patients who have CF. That might be our little Zoie. Derik and I were able to help contribute by bidding on Nuggets tickets that we won, but I never feel like it's enough. I wish we could give all our money to CF honestly. When I come to all of you in a few months to start our fundraising for the Great Strides walk in June, just remember what it goes towards and how if you just donate 33 dollars, you will save a life. <3
Thanks for letting me share such a humbling experience with you all. I really think everyone should go to stuff like this at some point; it will change you, trust me!
Last night Derik and I got to be a part of a glamourous, heart warming, and humbling evening surrounded by Cystic Fibrosis families. Derik had an employee (high up) who works in the insurance department for Enterprise come to him about a year ago and start talking about CF. Kim has a niece with CF, and little did she know we had a daughter with it as well. They have shared stories and courage, and she told us and invited us to this amazing event last night for Cystic Fibrosis.
With Enterprise being a huge sponsor for the event, we went as one family to represent CF and Enterprise along with some other employees. We got to get dressed up, I even wore heels, which I don't do, and really have a life changing evening.
We heard several stories, some videos, some live, of kids, parents, and adults who live with this disease. This is where you take a step back and remember that Zoie, even though she is healthy right now, fights the same fight that these people do on a daily basis.
We heard the story of a mom who has a 7 and 10 year old boy and girl both with Cystic Fibrosis. It showed them doing their breathing treatments, taking their enzymes, doing vest treatments, and exercising. The 10 year old boy did a lot of talking, and the one thing that stuck with me, was this, " I pray that one day there will be a cure for this, so maybe ill know what it feels like to breath without wheezing and live without this disease." He had tears in his eyes when he said this, and he was 10. No 10 year old should be having to say something like that with tears. It reminded me how very important getting Zoie's two vest treatments in everyday is, and maybe why when she sleeps she snores and always has her mouth open.
The event raised over 85,000 dollars, and CF research is so close to getting a drug that will help 60% of patients who have CF. That might be our little Zoie. Derik and I were able to help contribute by bidding on Nuggets tickets that we won, but I never feel like it's enough. I wish we could give all our money to CF honestly. When I come to all of you in a few months to start our fundraising for the Great Strides walk in June, just remember what it goes towards and how if you just donate 33 dollars, you will save a life. <3
Thanks for letting me share such a humbling experience with you all. I really think everyone should go to stuff like this at some point; it will change you, trust me!
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