Skip to main content

Some things for her to know.....

As my C-section date approaches, yes we still have three months, but Ivie could come early, and as we think more about Zoie going in for the VNS surgery, my mind keeps wandering and making these lists of things I want to tell Zoie about.  Im not a fan of surgery.  In fact it is terrifying to me. I thought before she went in for surgery, if she does, and before I do, I would take some time to jot down some things I want my little girl to know about life.  I would usually write these thoughts in her baby book, but that baby book stopped at age two :)

Your dad and I think it's pretty special to have a little girl.  Im sure we would have loved a little boy, but you make having a little girl extra special.

All those times I don't answer my phone during the day, Im probably napping with you.  I don't care if you're supposed to be in your crib or in a bed for every nap.  It's you and I's bonding time and I love it!

I love to kiss your feet.  You think it's funny, your dad thinks it's gross because they are always salty due to your cf.

You know when someone hurts themselves, somehow.  You think it's funny....not sure this is a good thing that you laugh when someone says, "ouch" or "uh oh."  It's cute.

God loves you.  He made you for a reason.

You are stronger than anyone ever thinks.

You have the best daddy.  He works hard so you and I can be together during the days.  When he gets home, he lights up seeing you say, "dada."  He would do anything for you!

You are Zoie.  You're not CF, or seizures, or microcephaly. 

Never stop smiling! 

You have taught me who God is, what faith is, what patience is, what perseverance is, what love is, what hope is, and what a miracle is.  You have made your daddy and I closer.

You hate cold food, but you get it anyways to warm up those taste buds.

We are giving you a sister to help you, help us, and I know you will help her.  I hope she is your best friend and you are hers.

I hate that you grind your teeth when you go to sleep.

Sorry for giving you my big eyebrows ;) 

Daddy is sorry for giving you his big ears ;)

I love painting your toes and taking you swimming in the summer.

You have some of the best doctors out there.  So good we always tell Daddy's work we won't move.

More people ask me how you're doing than asking me how I'm doing ;)  Don't worry.  I expect it.

When you grow up, we will teach you to pray.

You have more people who love you than you know, including your daddy and I.  We will all advocate for you, always.

Thanks for learning to give me hugs, while you pull my hair.

You love to dance.

You now know how to pull our your earing, but playing with your ears soothes you.  Not stopping it.

Who knew that Zoie meant life when we named you?  Not us :)

Love you Zoie Rae.











Comments

Post a Comment

Popular posts from this blog

A letter to my daughter on your first day, of your first year of school.

I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear...

That extra Chromosome 21

My original OB doc sat me down 8 weeks ago and told me she wanted me to see a specialist for our 20 weeks ultrasound. Not because there were any factors pointing to abnormalities, but because I'm one of those weird people, who no matter what we do, we get thrown curve balls when it comes to pregnancies and births. Walking into that appointment today, Derik and I had zero fears, and zero doubts that everything was going to be perfect. And perfect she was! 10 little fingers, 10 little toes, a big ol' noggin, 4 chambers on her heart, and she was moving like crazy. Let me back up and say that Derik and I took the necessary steps we felt we needed to to ensure that we have a healthy baby. But, we also know, that in the end, God is in full control and it's His plan. Always! So, after looking Charlie Fae over, our doctor proceeded to tell us that she has a white spot on her heart. It's not small, but it's also not large. This white spot is a sign of Downs Syndrome. I can...

Someday I'll wish upon a star....

Okay, so, since we have never went on a family vacation, im not experienced on blogging them obviously. Bare with me, as I do my best to share in words with all of you,Zoie's Make-A-Wish beach vacation to Newport Beach, CA. Zoie's wish got accepted about 2 months prior to our vacation after going through several steps and an interview process with Make-A-Wish Colorado. Obviously Zoie couldn't tell us in words what her wish would be, but we know she loves the water, she loves textures, being outside, on walks, on runs, and music, so what better place to experience this all than at the beach! We choose Calofornia because it was fairly close, had Disneyland, we knew the temp would be tolerable, and Newport had the Boardwalk. Make-A-Wish was SO accommodating in every way, in helping to make sure first and foremost that Zoie's needs were met! Our family friend, Erin Hoffner threw us a wonderful, beach themed, send off party two weeks prior to our departure. Here, we got to ...