Letting you into the world of seizures.

Someone posted this article on my Facebook page. As I sat and read it, I knew all too much what this family was talking about. As we work on getting Zoie on the waiting list for the medical marijuana minus the THC, all you can do is be patient, trust God and pray. Although this boy has a little more severe diagnosis, this is what we go through on a weekly basis believe it or not. I wouldn't be able to sit down and write this, so here is a snippet of what happens in the life of an epileptic.

http://www.5280.com/healthandwellness/magazine/2014/04/tangled-web?page=full

Comments

A letter to my daughter on your first day, of your first year of school.

I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear

That extra Chromosome 21

My original OB doc sat me down 8 weeks ago and told me she wanted me to see a specialist for our 20 weeks ultrasound. Not because there were any factors pointing to abnormalities, but because I'm one of those weird people, who no matter what we do, we get thrown curve balls when it comes to pregnancies and births. Walking into that appointment today, Derik and I had zero fears, and zero doubts that everything was going to be perfect. And perfect she was! 10 little fingers, 10 little toes, a big ol' noggin, 4 chambers on her heart, and she was moving like crazy. Let me back up and say that Derik and I took the necessary steps we felt we needed to to ensure that we have a healthy baby. But, we also know, that in the end, God is in full control and it's His plan. Always! So, after looking Charlie Fae over, our doctor proceeded to tell us that she has a white spot on her heart. It's not small, but it's also not large. This white spot is a sign of Downs Syndrome. I can&#

Real and raw emotions

My name is Lindsey. I'm a wife. I'm a special needs mom. I'm a regular mom. I'm a friend, a daughter, a sister, and a believer in God and miracles. Bedore you question why I'm writing this, let's just say that writing helps me, it's like a form of counseling, plus, both my girls are tucked into their beds sound asleep and I felt the need to share what happened today. Going back to being a believer, I used to be SO good at closing my eyes every night and thanking God for giving me another day with both of my daughters and my husband. I started this prayer (it's a simple one) when Zoie went a few nights a year or so ago, with seizures that lasted all night long, and I had to sit up and watch her, just to make sure she was still breathing. It made me thankful, for the simplest things in life. As time went on, and "bad" stuff doesn't happen, you forget to be thankful for the simple in life, the things that truly matter. Today was a normal day.

Life as we know it

Search This Blog