After our few recent Hospital stays with Zoie because of seizures, and med changes, we were hoping for a week span between seizures. We made it four days and she had one today. Not a bad one, more because she was exhausted from waking up at 5:45 by her choice and not letting her brain settle down enough to nap. At the time, I get frustrated, mad, and loose patience from these dam things, but after hours of Parenthood, and cuddles all afternoon from my girls, I said to myself, "at least they stopped, weren't in her sleep, and we went four days without any :) I have to pull the good out of each day, or lots of days would stink. So now we keep waiting for the new meds to take full effect, pray and wait for the red card. One step at a time.
Even with seizures we had a fantastic day. We delivered Valentines to all Zoie's little friends, I got my yummy iced coffee because I'm always tired now days, we went through all the 12-18 month summer clothes that soon my little Ives will be in, and the girls and I dsnced to the, "lime in the coconut" song.... It's no wonder why my girls are such little music divas. If you were a fly on the wall In our house you would think we are crazy. Dancing, singing, and clapping all the time. Whatever makes them smile right?
While I was kinda mad about Zoie already having a seizure, my sweet friend sent me the kindest, sweetest, text message telling me how she admires me for "having it all together." It sorta made me cry, for the compliment, and getting recognized by an outsider on how much I have to do on a daily basis without help. Thanks for that friend, we all need some recognition, but truthfully, I am far from having it all together! Dinner gets made about two times a week, my house is a tornado zone until we pick up before bed, Zoie doesn't always get two vest treatments, my to do list never gets done, I shower a few times a week, I don't get my daily runs in like I want, we waste time driving just because I need a break, and so much more. I may seem "all together" but nope, not even close :) I do what has to be done that day and I have learned that if a lot gets left sitting on the table or the to do list, we leave it. Sleep is important, rest is important, and the girls health is important. Everything else can wait during the days. Thanks for thinking I have it all together 💛 I'm just thankful that I know I'm not the only mom/person who doesn't, but tries. That's all we can do. Thanks to my sweet friend though, I snapped out of my 2 minute funk and realized how blessed I was and am. Sometimes our ears are just ringing at the same time and that little bit of encouragement helps!
I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear
You are a huge inspiration to me and many many other moms. We love you and your family. Thank you for being in out lives and sharing your story with everyone <3
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