Derik starts his new job on Tuesday, which means we won't get an actual "weekend" with him for a few weeks. His weekends will now be Wednesdays and Thursdays. This was our last actual weekend with him for a while and it was a good one :)
If you know about Cystic Firbrosis, your lungs collect and hang on to mucus. For the past two years we have been doing CPT treatments on Zoie, patting on her lungs for 20 minutes a day. She is now, well, sorta big enough, but old enough for a vest! What a vest does is goes on her exactly like a life jacket, inflates with a pump, then vibrates for 15 minutes at a time to loosen up her secretions. I was so excited for this because I truly think it will help her stay out of the hospital and she shouldn't get sick quite so easy. Well, we recieved her vest Saturday, bright pink :) and the lady came on Sunday to set up the machine for us and show us how to use it. Needless to say, it will take some getting used to for Zoie, and when she wears it, it ingulfs her and she sounds just like a sheep. Funny picture huh? ;)
It's almost like she knows to make sounds while it's vibrating her. Anyways, we are super excited about it and pray it helps us stay out of the hospital next Winter.
I head out to Nebraska for a girls trip in a few weeks and will be away from Zoie and Derik for the whole weekend. I'm excited and it's much needed, but there is a lot to get done before that, like teaching Derik how to feed Zoie her solids 3-4 times a day. I know that sounds silly, but Zoie is tricky to feed because she is just now learning how to move her tongue around well, therefor, has just recently gotten very good at eating her food. I am or was the only one who could feed her before, but after this weekend of much patience and practice, Derik is good at it too! This is a huge weight off my shoulders and it's wonderful to have someone else who can feed her.
Speaking of eating, this is a huge milestone we have waiting to hop right over the last year. We have worked hard with feeding/speech therapist, and after much consistency, Zoie is no longer gagging with eating, can mover her food around, swallow, and is all ready for more. Praise God, and hopefully it just keeps getting better so she can feed herself in the next year :)
We did some shopping this weekend for Derik, he got new suits, I got a Starbucks, made me happy! Plus Zoie enjoyed being outside because it was beautiful!
We also (Derik and I) got a much needed little break from our peanut and got to enjoy some mexican food and margs with some family. It's amazing what a little break will do for you. Recharge for this mama :)
Last night, we thanked God for how well Zoie has been doing, for blessing us with a beautiful weekend to enjoy, and for providing Derik with a promotion to DIA branch manager spot. If you take the time to enjoy God's beauty, He will shine through <3
I remember when you were born, 4 very short years ago. School wasn't even in your dad and I's minds. It's almost as if we forgot that when you have a child, part of them growing up is sending them off to school. You would think this would have crossed my mind being an Elementary Ed Grad, but we were so caught up in the now, and making sure we took our lives day by day, that no, school never came up. We decided to keep you home for your first year of preschool, due to your Cystic Fibrosis and learning delays. We wanted to strengthen your immune system an extra year, keep working on home therapies to help your brain development, speech, and muscle movement. You also had a very special friend at home to learn and grow with you; your baby sister Ivie. The last year you two have taught each other so much, she has pushed you, and you have pushed her. I'm so thankful we kept you home for that extra year! We have found a great preschool for you! It's called the Monroe Ear...
Comments
Post a Comment