I have been postponing blogging about this for a while now, trying to push it to the side, but we all have to face "life" at some point and this is one of those steps.
Derik and I were waiting for a sign as to if we should pull the trigger and do Zoies surgery now or wait. I knew we wouldn't schedule it until we knew we were doing the right thing. Two days after we asked God for a sign, we were in the er for IV fluids for Zoie because of all day seizures which led to throw up and dehydration. This was our sign; help Zoie have as little seizures as possible.
She will be getting VNS surgery Friday March 14th. We are ready to get it done and over with. We are also not looking forward to sitting in a waiting room For hours. I'm still contemplating on what we will do for that time, no I will not be able to sit and read as someone suggested.
We show up at 9. She will get an hour long physical. We have an hour break, then checkin for surgery is at 11. Starting at 1 she will get her ct scan of her lungs (she needs one anyways and since she will be under we are doing it all at once for her CF) which will be followed by her surgery. She will be under complete anesthesia, with a breathing tube in. They will make one incision on the left side of her neck, place the pacemaker under her left collarbone, the cord will them go up to her brain stem. (This is a quick description).
Since she is so tiny, they said they will take their time and be done about 4. She will then sit in recovery for two hours. IF all goes perfectly and she has no breathing issues, we will come home later that night thank gosh. Home is always the best place if possible. We will pack a bag in case though but we are hoping for 100% perfection ;)
What we are most nervous about: surgery, it's always scary. Zoie being so tiny. Breathing issues. An infection at the site. Leaving her in other peoples hands for hours and having no control.
I know everything will be fine. I know we will look back at this and be thankful it's done and that we did it. It's just the anticipation and the day of.
We ask for prayers and support that day. Lord knows I'm already emotional with being pregnant. Most importantly, pray for Zoie and God to be right there with her the whole time. Pray for some peace and comfort for Derik and I. And pray for the surgeons and anesthesiologist to do their job correctly. I have had many people ask how to show your support... Prayer, a text, a phone call. Don't forget about my sweet husband though. He is strong but still needs support ;)
We are ready for this and for now will pray for this first step which is the surgery.
On a final note... As I read a blog this week about a sweet boy who has cancer, his mom had found comfort in this;
Jesus loves us this I know
For the Bible tells me so
Little ones to Him belong
They are weak but He is strong
I will be singing this that day as Zoie is in Gods hands for a few hours. There is something comforting about that little part of such a huge song!
Thanks in advance for the prayers and support. We will let everyone know when Zoie is out and wrapped in our arms again <3
On a side note, lots of people have asked me how Zoie has been doing... She has had a wonderful winter with gaining weight, not being sick, and her seizures haven't been bad. The reason we are doing this surgery is so we can hopefully pull her off one or two of her seizure meds that aren't good for her. Give a little, gain a lot. Or so we hope so. So yes, she is doing wonderfully. We just want her to do even better ;)
She will be getting VNS surgery Friday March 14th. We are ready to get it done and over with. We are also not looking forward to sitting in a waiting room For hours. I'm still contemplating on what we will do for that time, no I will not be able to sit and read as someone suggested.
We show up at 9. She will get an hour long physical. We have an hour break, then checkin for surgery is at 11. Starting at 1 she will get her ct scan of her lungs (she needs one anyways and since she will be under we are doing it all at once for her CF) which will be followed by her surgery. She will be under complete anesthesia, with a breathing tube in. They will make one incision on the left side of her neck, place the pacemaker under her left collarbone, the cord will them go up to her brain stem. (This is a quick description).
Since she is so tiny, they said they will take their time and be done about 4. She will then sit in recovery for two hours. IF all goes perfectly and she has no breathing issues, we will come home later that night thank gosh. Home is always the best place if possible. We will pack a bag in case though but we are hoping for 100% perfection ;)
What we are most nervous about: surgery, it's always scary. Zoie being so tiny. Breathing issues. An infection at the site. Leaving her in other peoples hands for hours and having no control.
I know everything will be fine. I know we will look back at this and be thankful it's done and that we did it. It's just the anticipation and the day of.
We ask for prayers and support that day. Lord knows I'm already emotional with being pregnant. Most importantly, pray for Zoie and God to be right there with her the whole time. Pray for some peace and comfort for Derik and I. And pray for the surgeons and anesthesiologist to do their job correctly. I have had many people ask how to show your support... Prayer, a text, a phone call. Don't forget about my sweet husband though. He is strong but still needs support ;)
We are ready for this and for now will pray for this first step which is the surgery.
On a final note... As I read a blog this week about a sweet boy who has cancer, his mom had found comfort in this;
Jesus loves us this I know
For the Bible tells me so
Little ones to Him belong
They are weak but He is strong
I will be singing this that day as Zoie is in Gods hands for a few hours. There is something comforting about that little part of such a huge song!
Thanks in advance for the prayers and support. We will let everyone know when Zoie is out and wrapped in our arms again <3
On a side note, lots of people have asked me how Zoie has been doing... She has had a wonderful winter with gaining weight, not being sick, and her seizures haven't been bad. The reason we are doing this surgery is so we can hopefully pull her off one or two of her seizure meds that aren't good for her. Give a little, gain a lot. Or so we hope so. So yes, she is doing wonderfully. We just want her to do even better ;)
Will pray for you guys! I have worked with students with VNS in the school setting and they are super helpful to have. I hope you guys notice a difference!
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